JOIN OUR TEAM:
FIT FOR A CURE
HELP US RAISE $25,000!
We enjoyed a casual 2-3 mile stroll and helped raise money for crucial research, bringing us closer to a future free from Crohn's disease and Ulcerative Colitis. Over 1.6 million American adults and children are affected by these digestive diseases. While many suffer in silence, Take Steps brings together this community in a fun, energetic and supportive atmosphere.
Your donation will help support local patient programs, as well as important research projects. In addition to donating, you can join us at the event as a member of our team. There will be food, music and family activities. The more money we raise, the closer we will be to making life more manageable for patients who live with these diseases every day.
Please JOIN OUR TEAM or DONATE to our efforts to support CCFA in finding cures!
2016 Boston Take Steps Walk Chair
When I was first diagnosed with IBD, there was so little awareness of Crohn’s Disease, Ulcerative Colitis and chronic illness as a whole. People didn’t discuss illnesses – we kept them private and secret. I didn’t even tell my closest friends or family what I was going through. Take Steps has introduced me to a community that talks about our symptoms, our struggles and our strengths. This has inspired me to be more open and share my story with those who need to know they are not alone.
Living with IBD can be a daily struggle and finding the right medications can be the key to remission. There are many treatment options now available. The more we share our stories with each other – the better our chances are to minimize flare ups. I was resistant to many medications at first because I thought I could control my symptoms with diet, holistic remedies and acupunture. I was afraid of side effects from the medications my doctor recommended. Through discussions with the CCFA community I realized that a good doctor can monitor you to avoid or reduce complications from medications. When I finally went on biologics in addition to maintenance medication I achieved remission for the first time. I am committed to spreading information to others so that each of us can choose the treatment options that are available to us. Thanks to medical research there are more options available now than even 10 years ago –hopefully there will be a time none of us has to suffer with prolonged fare ups.
IBD is more than just GI problems. With my last severe flare up my medications had stopped working and I went through months of pain, muscle wasting and terrible symptoms while I waited to go on Remicade. I am still working to strengthen the core muscles that weakened from being bedridden during this period. Through my work with therapeutic Pilates I have developed a program to heal physically from the ravages of IBD and other auto immune diseases. Let’s spread the word so we can empower ourselves and others who need our help.
As a mom with UC – wow – I have so much respect for parents suffering from IBD with young children. Needing that urgent bathroom visit while out with the kids, having fear of going to their football or baseball games because there isn’t a bathroom there, or having energy in general to keep up with them! By coming together as a community, we can support one another with advice, support and humor to get through these tough situations!
Every time we open up and share our pain we hear that we are not alone. And this makes all of us stronger!
MY ROLE AS CHAIR
I am honored to serve as the Chairman for this year's Boston Take Steps Walk. In my role, I am partnering with the CCFA to grow the #2 Take Steps Walk in the country by:
- Raising awareness about Crohn’s disease and ulcerative colitis
- Inspiring others to have the courage to share their story and join/form a team
- Engaging the community to support the event through sponsorship or a team
Participating in a walk program is the simplest most impactful way for patients to get connected to support and for businesses to support their community in a visable way. As a local business myself, I am hoping to inpire other businesses to get involved by forming a team to walk beside the community they serve for this important cause.
HOW TO SUPPORT:
Make a donation
Involve your company or studio
CCFA staff support us every step of the way. They will come to you to host a kickoff, provide you with tools and resources to be successful in fundraising or to manage your disease, and everything in between! If you want more information, contact Stacey Kokoros, Walk Manager, at email@example.com or 781-626-0651
Thank you in advance for your generous support,